September is Childhood Cancer Awareness Month. Read this powerful testimonial written by the parents of brave cancer warrior Coben Swanson, an 8yr old boy struggling with T-cell ALL leukemia & double craniectomy.
The original testimonial was written by TeamCoben. I am reposting it here with permission.
While Coben has been through so many obstacles, he still has a very hard time accepting that other#children are #sick like him. As #adults I think we want to find others in a similar situation as ours for a sense of #comradery maybe it’s just to know that we’re not alone… ultimately we just want someone to #understand.
But with kids it’s different. Coben and most the kids we meet, keep to themselves, and don’t seem to find the same comfort as adults do in finding someone in like circumstances.
But here is a book created by #parents and their son’s daily #caretaker helping us as parents to open segways with our kids, both #healthy and sick, to grasp an understanding of what it’s like to be different. I asked Coben, “what did he think about other children he had seen in wheelchairs before he had one of his own?” Very sweetly and innocent he said “I thought maybe their legs were broken”
Kids are so matter of fact, so I think it’s important to use family time as an #opportunity to educate them on these topics.
Not long ago Coben had a VERY long day in chemo and wanted ice cream on the way home. Of course I stopped, unloaded his wheelchair, put on his mask, sought out a ramp and worked our way into the shop. Outside sat a family of 5, a set of parents and kids ranging from maybe 5-10… the middle child asks “what’s wrong with him, why is he like that?” (In my mind I responded “you mean what’s right with him?”) But I of course simply said “well, he has cancer” to which the youngest child immediately asks “Is he gonna die?” Something in me didn’t feel comfortable offering a definite “NO” since #truth is no one really knows… there are treatments, not cures. But I realized that I was the only one panicking over that question, Coben didn’t seem to think anything of it.
He has been so educated on his situation that he has a mature grasp on the question of his own mortality.
So again we are reminded, there is so much we can learn from our kids. Take this #September for#ChildhoodCancerAwarenessMonth as an opportunity to discuss these topics with your children.
They won’t learn compassion and understanding out in the world, so why not use the time at home to learn it as a family? Put your child in the situation… “if you became I’ll tomorrow… if you were confined to a wheel chair… if you couldn’t visit with friends : how would you feel?”
I strongly encourage you to check out Super Captain Brave Man, whether or not the kids walk away with lessons, you certainly will!
Last week, Nurse Leah Lodevico had the privilege of reading The Adventures of SuperCaptainBraveMan to a spritely class of four and five year olds at Pacific Clinics Head Start Program Lexington Center in Glendale, California.The children were very attentive and engaged. After hearing the story, they drew pictures of what they remembered. Check out these masterpieces!
If you’d like your child’s class to have access to The Adventures of SuperCaptainBraveMan, let us know! We’d be happy to get in contact with your child’s school. Or better yet, you can purchase books and gift them to your local schools, hospitals or libraries by ordering at www.SuperCaptainBraveMan.com.
Saturday, April 23rd was a day worth celebrating about. It was the day The Adventures of SuperCaptainBraveMan children’s book officially launched, AND it was the day that Kyle, the central figure of the book, turned 10 years old!
The party was attended by friends, family, and special acquaintances totaling more than 130 from all across the country.The party started at 1 pm on an absolutely gorgeous, picture-perfect Southern California day. As guests filtered in, they were greeted with festive music in a park-like backyard atmosphere.
Me and my dog Mochi
The stage where my book reading took place
Fun obstacle course for the kids to play on
My silly nurse Brigette doing her best supercaptainbravegirl impression
My new friend Frankie
My friends Yvonne and Josie
My friends Sam and Axel
Here’s daddy, Ms. Sharon, mommy and Victor reading my book for the first time
Here’s Brigette, Ms. Sharon, daddy, mommy, Victor, Mochi and me
My yummy birthday cake
Blowing out the candles
Mommy with my favorite home nurses
Caterer Chef Jaydene, Delectable Creations
My friend Jax
Victor and Samantha (a.k.a, “Santa”)
Here’s a shout-out to all the vendors that helped contribute to the day:
We’re excited to announce the upcoming launch of our children’s book series, The Adventures of SuperCaptain! Book 1: A Day at the Park, will be released on Kyle’s birthday, April 23, 2016.
The book marks a special collaboration between husband and wife team Paul and Jennifer Norman, who co-authored the book, in conjunction with Kyle’s nurse, Victor Lodevico, who happens to also be a very talented digital artist.
Here’s the Synopsis:
Kyle is a boy like any other boy his age, only he has a rare condition that hinders his day-to-day physical abilities. It is when Kyle dreams that he transforms into his alter ego, SuperCaptainBraveMan!
SuperCaptainBraveMan is a friend to all kids, helping them discover their own courage and strength to overcome daily challenges.
In Book 1: A Day at the Park, SuperCaptainBraveMan helps Emily, a girl in a wheelchair, make new friends.
To pre-order Book 1, please visit https://gumroad.com/supercaptainbraveman.